Shared knowledges, communications and decisions about chronic illness: Perspectives of people with hepatitis C

Abstract

A quantitative and qualitative research project explores the use of print- and internet-based information sources by people with hepatitis C. Twenty participants were interviewed about their experiences of informationsharing in everyday and clinical settings, including about conditions that enable information to be exchanged, discussed and incorporated in processes of shared decision-making. In part, the interviews highlighted some obstacles to effective communication between health professionals and people with hepatitis C.