Publication:
Anticipated uptake of genetic testing for familial melanoma in an Australian sample: An exploratory study
Anticipated uptake of genetic testing for familial melanoma in an Australian sample: An exploratory study
dc.contributor.author | Kasparian, Nadine | en_US |
dc.contributor.author | Meiser, Bettina | en_US |
dc.contributor.author | Butow, P | en_US |
dc.contributor.author | Job, R | en_US |
dc.contributor.author | Mann, G | en_US |
dc.date.accessioned | 2021-11-25T12:58:26Z | |
dc.date.available | 2021-11-25T12:58:26Z | |
dc.date.issued | 2007 | en_US |
dc.description.abstract | Introduction: The potential role of genetic testing in families with an inherited pattern of melanoma is a complex issue, and yet limited data exist on perceptions of predictive genetic testing for mutations among individuals at high risk of melanoma. Methodology: Forty semi-structured interviews were undertaken with affected and unaffected individuals at either high or average risk of developing melanoma due to family history. Interviews addressed key issues such as: the role of genetics in causal attributions for melanoma; genetic testing intentions and motivations; perceived accuracy of genetic testing in predicting melanoma onset, and the impact of varied accuracy on testing intentions; views on the testing of children; perceived benefits and limitations of testing; and information needs and communication preferences. Results: In-depth thematic analysis revealed a number of important qualitative differences between groups at varying risk of melanoma, and genders. Specifically, participants with a family history of melanoma believed genetic factors play an important role in melanoma causation; conveyed strong intentions to pursue genetic testing; and viewed the benefits of genetic testing as outweighing the limitations. Females appeared to endorse the testing of children more firmly than males, and males` intentions to pursue testing appeared more contingent on penetrance than females`. Across groups, the most preferred communication option was an informational video. Conclusion: Those at high risk of melanoma due to family history express a strong interest in predictive genetic testing. Copyright (C) 2006 John Wiley & Sons, Ltd. | en_US |
dc.identifier.issn | 1057-9249 | en_US |
dc.identifier.uri | http://hdl.handle.net/1959.4/38817 | |
dc.language | English | |
dc.language.iso | EN | en_US |
dc.rights | CC BY-NC-ND 3.0 | en_US |
dc.rights.uri | https://creativecommons.org/licenses/by-nc-nd/3.0/au/ | en_US |
dc.source | Legacy MARC | en_US |
dc.subject.other | familial melanoma | en_US |
dc.subject.other | predictive genetic testing | en_US |
dc.subject.other | attitudes and | en_US |
dc.subject.other | intentions | en_US |
dc.subject.other | cancer | en_US |
dc.subject.other | oncology | en_US |
dc.title | Anticipated uptake of genetic testing for familial melanoma in an Australian sample: An exploratory study | en_US |
dc.type | Journal Article | en |
dcterms.accessRights | metadata only access | |
dspace.entity.type | Publication | en_US |
unsw.accessRights.uri | http://purl.org/coar/access_right/c_14cb | |
unsw.identifier.doiPublisher | http://dx.doi.org/10.1002/pon.1052 | en_US |
unsw.relation.faculty | Medicine & Health | |
unsw.relation.ispartofissue | 1 | en_US |
unsw.relation.ispartofjournal | Psycho-Oncology: Journal of the psychological, social and behavioural dimensions of cancer | en_US |
unsw.relation.ispartofpagefrompageto | 69-78 | en_US |
unsw.relation.ispartofvolume | 16 | en_US |
unsw.relation.originalPublicationAffiliation | Kasparian, Nadine, Prince of Wales Clinical School, Faculty of Medicine, UNSW | en_US |
unsw.relation.originalPublicationAffiliation | Meiser, Bettina, Prince of Wales Clinical School, Faculty of Medicine, UNSW | en_US |
unsw.relation.originalPublicationAffiliation | Butow, P | en_US |
unsw.relation.originalPublicationAffiliation | Job, R | en_US |
unsw.relation.originalPublicationAffiliation | Mann, G | en_US |
unsw.relation.school | Clinical School Prince of Wales Hospital | * |