Publication:
A comparison of community, clinician and patient preferences for naming a cancer-related mutation
A comparison of community, clinician and patient preferences for naming a cancer-related mutation
dc.contributor.author | Wakefield, Claire | en_US |
dc.contributor.author | Meiser, Bettina | en_US |
dc.contributor.author | Homewood, J | en_US |
dc.contributor.author | Barlow-Stewart, Kristine | en_US |
dc.contributor.author | Tucker, Katherine | en_US |
dc.date.accessioned | 2021-11-25T12:58:07Z | |
dc.date.available | 2021-11-25T12:58:07Z | |
dc.date.issued | 2007 | en_US |
dc.description.abstract | This study compared language preferences to describe a cancer-related mutation in three groups: 253 members of the general community, 20 clinicians working in cancer genetics, and 269 individuals at increased risk of carrying a cancer-related mutation (including 198 women with a strong family history of breast and/or ovarian cancer, and 71 individuals with a family history of hereditary non-polyposis colorectal cancer). In the community sample, `faulty gene' was the preferred term to describe a cancer-related mutation, although females, those affected by cancer and those who felt cancer had a large impact on their lives were more likely to prefer the terms `gene change' or `altered gene'. In contrast, the clinicians' preference ratings for `faulty gene' and `gene change' were equal. When forced to choose between `faulty gene' and `altered gene', the high-risk patient group reported preferring `faulty gene', although over 40% were happy with either term. Further research investigating individuals' understanding of the different terms that can be used to describe a cancer-related mutation, and the functional impact of these terms on patients' thoughts and feelings about their condition and on their health-related behavior after genetic counseling would be worthwhile. | en_US |
dc.identifier.issn | 0009-9163 | en_US |
dc.identifier.uri | http://hdl.handle.net/1959.4/38801 | |
dc.language | English | |
dc.language.iso | EN | en_US |
dc.rights | CC BY-NC-ND 3.0 | en_US |
dc.rights.uri | https://creativecommons.org/licenses/by-nc-nd/3.0/au/ | en_US |
dc.source | Legacy MARC | en_US |
dc.subject.other | Patient prefrences | en_US |
dc.subject.other | Clinician preference | en_US |
dc.subject.other | Cancer-related mutation | en_US |
dc.subject.other | Language preferences | en_US |
dc.subject.other | Cancer | en_US |
dc.title | A comparison of community, clinician and patient preferences for naming a cancer-related mutation | en_US |
dc.type | Journal Article | en |
dcterms.accessRights | metadata only access | |
dspace.entity.type | Publication | en_US |
unsw.accessRights.uri | http://purl.org/coar/access_right/c_14cb | |
unsw.identifier.doiPublisher | http://dx.doi.org/10.1111/j.1399-0004.2007.00754.x | en_US |
unsw.relation.faculty | Medicine & Health | |
unsw.relation.ispartofissue | 8 | en_US |
unsw.relation.ispartofjournal | Clinical genetics | en_US |
unsw.relation.ispartofpagefrompageto | 140-147 | en_US |
unsw.relation.ispartofvolume | 71 | en_US |
unsw.relation.originalPublicationAffiliation | Wakefield, Claire, Prince of Wales Clinical School, Faculty of Medicine, UNSW | en_US |
unsw.relation.originalPublicationAffiliation | Meiser, Bettina, Prince of Wales Clinical School, Faculty of Medicine, UNSW | en_US |
unsw.relation.originalPublicationAffiliation | Homewood, J | en_US |
unsw.relation.originalPublicationAffiliation | Barlow-Stewart, Kristine | en_US |
unsw.relation.originalPublicationAffiliation | Tucker, Katherine | en_US |
unsw.relation.school | Clinical School Prince of Wales Hospital | * |