Cultural aspects of cancer genetics: setting a research agenda Meiser, Bettina en_US Eisenbruch, M en_US Barlow-Stewart, K. en_US Tucker, K. en_US Steel, Z. en_US Goldstein, D. en_US 2021-11-25T13:05:46Z 2021-11-25T13:05:46Z 2001 en_US
dc.description.abstract BACKGROUND: Anecdotal evidence suggests that people from non-Anglo-Celtic backgrounds are under-represented at familial cancer clinics in the UK, the USA, and Australia. This article discusses cultural beliefs as a potential key barrier to access, reviews previous empirical research on cultural aspects of cancer genetics, draws implications from findings, and sets a research agenda on the inter-relationships between culture, cancer genetics, and kinship. METHODS: The CD-ROM databases MEDLINE, PsychLIT, CINAHL, and Sociological Abstracts were searched from 1980 onwards. RESULTS: Cultural aspects of cancer genetics is the focus of an emerging body of publications. Almost all studies assessed African-American women with a family history of breast cancer and few studies included more diverse samples, such as Americans of Ashkenazi Jewish background or Hawaiian- and Japanese-Americans. Our analysis of published reports suggests several directions for future research. First, an increased focus on various Asian societies appears warranted. Research outside North America could explore the extent to which findings can be replicated in other multicultural settings. In addition, control group designs are likely to benefit from systematically assessing culture based beliefs and cultural identity in the "majority culture" group used for comparative purposes. CONCLUSION: More data on which to base the provision of culturally appropriate familial cancer clinic services to ethnically diverse societies are needed. Empirical data will assist with culturally appropriate categorisation of people from other cultures into risk groups based on their family histories and provide the basis for the development of culturally appropriate patient education strategies and materials. en_US
dc.identifier.issn 0022-2593 en_US
dc.language English
dc.language.iso EN en_US
dc.rights CC BY-NC-ND 3.0 en_US
dc.rights.uri en_US
dc.source Legacy MARC en_US
dc.title Cultural aspects of cancer genetics: setting a research agenda en_US
dc.type Journal Article en
dcterms.accessRights metadata only access
dspace.entity.type Publication en_US
unsw.identifier.doiPublisher en_US
unsw.relation.faculty Medicine & Health
unsw.relation.ispartofissue 7 en_US
unsw.relation.ispartofjournal Journal of Medical Genetics en_US
unsw.relation.ispartofpagefrompageto 425-429 en_US
unsw.relation.ispartofvolume 38 en_US
unsw.relation.originalPublicationAffiliation Meiser, Bettina, Prince of Wales Clinical School, Faculty of Medicine, UNSW en_US
unsw.relation.originalPublicationAffiliation Eisenbruch, M en_US
unsw.relation.originalPublicationAffiliation Barlow-Stewart, K. en_US
unsw.relation.originalPublicationAffiliation Tucker, K. en_US
unsw.relation.originalPublicationAffiliation Steel, Z. en_US
unsw.relation.originalPublicationAffiliation Goldstein, D. en_US Clinical School Prince of Wales Hospital *
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