Publication:
Better the devil you know? High-risk individual's anticipated psychological responses to fenetic testing for melanoma susceptibility

dc.contributor.author Kasparian, Nadine en_US
dc.contributor.author Meiser, Bettina en_US
dc.contributor.author Butow, P en_US
dc.contributor.author Job, R en_US
dc.contributor.author Mann, G en_US
dc.date.accessioned 2021-11-25T12:49:30Z
dc.date.available 2021-11-25T12:49:30Z
dc.date.issued 2006 en_US
dc.description.abstract Purpose: The psychological consequences of genetic testing for mutations among individuals at increased risk of developing melanoma remain unexamined. The present study aimed to explore anticipated emotional, behavioral, cognitive, and familial responses to hypothetical genetic testing for melanoma susceptibility. Methods: Forty semi-structured interviews were undertaken with affected (n=20) and unaffected (n=20) individuals at either high or average risk of developing melanoma due to family history. Results: In-depth thematic analysis revealed that, in response to being identified as a mutation carrier, most participants with a family history anticipated calmly accepting their increased risk; either increasing precaution adoption or maintaining already vigilant behavioral practices; perceiving such information as important and valuable; and communicating genetic test results to family members, despite the acknowledgement of potential difficulties. In response to being identified as a non-carrier, the majority of participants expected to feel relieved; to maintain current precautionary health practices; to still perceive themselves at some risk of developing melanoma; and to be wary of the potential negative behavioral consequences of disclosing such information to family members. Women appeared more likely than men to acknowledge the potential for depression and worry following genetic testing. In contrast, more males than females expected to carry a gene mutation, and viewed their current preventive practices as optimum. Conclusion: Genetic testing for melanoma risk is likely to elicit a complex array of emotional, behavioral, cognitive, and familial responses for both testees and their family members, and these responses are likely to bear subtle differences for males and females. en_US
dc.identifier.issn 1059-7700 en_US
dc.identifier.uri http://hdl.handle.net/1959.4/38178
dc.language English
dc.language.iso EN en_US
dc.rights CC BY-NC-ND 3.0 en_US
dc.rights.uri https://creativecommons.org/licenses/by-nc-nd/3.0/au/ en_US
dc.source Legacy MARC en_US
dc.subject.other gender differences en_US
dc.subject.other predictive genetic testing en_US
dc.subject.other familial melanoma en_US
dc.subject.other anticipated psychological impact en_US
dc.subject.other family communication en_US
dc.title Better the devil you know? High-risk individual's anticipated psychological responses to fenetic testing for melanoma susceptibility en_US
dc.type Journal Article en
dcterms.accessRights metadata only access
dspace.entity.type Publication en_US
unsw.accessRights.uri http://purl.org/coar/access_right/c_14cb
unsw.description.publisherStatement The original publication is available at www.springerlink.com en_US
unsw.relation.faculty Medicine & Health
unsw.relation.ispartofjournal Journal of Genetic Counselling en_US
unsw.relation.ispartofpagefrompageto 433-447 en_US
unsw.relation.ispartofvolume 15 en_US
unsw.relation.originalPublicationAffiliation Kasparian, Nadine, Prince of Wales Clinical School, Faculty of Medicine, UNSW en_US
unsw.relation.originalPublicationAffiliation Meiser, Bettina, Prince of Wales Clinical School, Faculty of Medicine, UNSW en_US
unsw.relation.originalPublicationAffiliation Butow, P en_US
unsw.relation.originalPublicationAffiliation Job, R en_US
unsw.relation.originalPublicationAffiliation Mann, G en_US
unsw.relation.school Clinical School Prince of Wales Hospital *
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