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metadata only access
Copyright: University of New South Wales
Access to the data is subject to originating data custodian and ethical restrictions. Ethics committee approval and other access conditions apply.
Copyright: University of New South Wales
Access to the data is subject to originating data custodian and ethical restrictions. Ethics committee approval and other access conditions apply.
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Abstract
A retrospective cohort study involving data linkage between the Australasian Society of Clinical Immunology and Allergy (ASCIA) Primary Immunodeficiency Diseases Register, the National Death Index (NDI) and the National Cancer Statistics Clearing House (NCSCH).The cohort includes all Australian cases of primary immunodeficiency disease (PID) notified to the ASCIA PID Register who had sufficient unique identifiers to allow data linkage (n=1,132 cases). Linkage identified notified death and cancer information for each registrant. Originating source(s): (1) ASCIA [PID Registry 1990 - 2008] (2) Australian Institute of Health and Welfare [Australian Cancer Database (ACD) - 1982-2005; National Death Index (NDI) - 1982-2008]
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Contact Information
Access type: Access by request. Contact the Information Officer for more information: info.acp@unsw.edu.au
